Category Archives: Survivor’s story

THE ROAD TAKEN – Chandan Das

8-10 thousand thalassaemic children are born every
year,out of which 80-90 per cent die each year, and presently there
are approximately a hundred thousand thalassaemic children
in the country.

 

   

THE ROAD TAKEN – Chandan Das



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THE ROAD TAKEN – Chandan Das

About 240 million people around the world are heterozygous for thalassemia, 20 million in India alone. If both parents are carriers of the thalassemic trait, there is a 25 per cent chance that their child will have thalassemia major. About a hundred thousand are born each year with thalassemia major, of which around 5000 births occur in India.

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THE ROAD TAKEN – Chandan Das

The Road Taken is a candid, well-researched, sensitive, personal narrative of a thalassemia patient weaving history, science, poetry, literature, and philosophy together. The author tries to step out of his self, view the world with love-filled eyes, with acceptance. It is a philosophic saga of the life of an individual against the Cosmic. The book exudes an extremely positive attitude of a person who has lived a meaningful life in spite of the ‘condition’ he was born with, and in the process, endears himself to the reader.

Professor Jayashree Mohanraj
The English and Foreign Languages University, Hyderabad

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THE ROAD TAKEN – Chandan Das

Constant monitoring of my hemoglobin was necessary: when my hemoglobin level fell to below 6gm%, it was time for blood transfusions.

An extract from the book.

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THE ROAD TAKEN – Chandan Das

While beta thalassaemia might spell immense physical pain, while it might stunt growth, while it might carry a sentence of a life to be cut short, it need not cut short the enjoyment of that life or shackle the spirit. From the suffering of thalassaemia to the joys of friendship, the sublimity of poetry, literature and nature, the love of family and the unexpected kindness of strangers, Chandan Das takes you on a truly uplifting journey, one that will make your spirit soar.

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THE ROAD TAKEN – Chandan Das

I waited and waited. Often I wondered what it was all about, the pain in my arm, these dark, high-ceilinged halls overlooking the hot sandbanks of a river that came and disappeared of its own accord, very contrary to my idea of what a river should be like; this humble self-effacing little bottle of blood hanging inverted by my bedside and having some strange connection with my body and my life, and the passive, waiting figures of Father and Mother, gazing out across the valley of sand where a river once had flowed and now there was only a wash of fire. And I wondered about the other children; how had they come to this broken-walled, forested house, what brought them here?

An extract from the book.

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THE ROAD TAKEN – Chandan Das

Home and in bed, inside blankets, I tried to sleep: it was cool and dark with the windows closed, but the lights of an aching pain pulsed in my head without stopping. I would be free now, after so long, of exhaustion, of the pain of the needle in my wrist, of the nausea of fever, of the tension of waiting for a reaction, of straining for breath with all my strength for air with an oxygen tube through my nose. Until the next transfusion.
And the next….

Read The Road Taken and you will be taken through the journey of thalassaemia and its effects.

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THE ROAD TAKEN – Chandan Das

A child born with thalassemia. A little town by the sea among hills and forests. A neighbouring family. An awakening of wonder at the human world. Poetry, the lords and ladies of Byzantium, wolves and firs and aspens bending in the wind. A search across the world for life-saving treatment for the child. A British Professor of Tropical Paediatrics on a British Aid mission, the august spires of Oxford, a kind and gentle healing… What next?

Share a moment with Chandan Das, his struggle of 47 years with beta thalassemia, and see the other side of the moon.

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