Category Archives: Beta thalassemia

THE ROAD TAKEN – Chandan Das



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THE ROAD TAKEN – Chandan Das

About 240 million people around the world are heterozygous for thalassemia, 20 million in India alone. If both parents are carriers of the thalassemic trait, there is a 25 per cent chance that their child will have thalassemia major. About a hundred thousand are born each year with thalassemia major, of which around 5000 births occur in India.

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THE ROAD TAKEN – Chandan Das

The Road Taken is a candid, well-researched, sensitive, personal narrative of a thalassemia patient weaving history, science, poetry, literature, and philosophy together. The author tries to step out of his self, view the world with love-filled eyes, with acceptance. It is a philosophic saga of the life of an individual against the Cosmic. The book exudes an extremely positive attitude of a person who has lived a meaningful life in spite of the ‘condition’ he was born with, and in the process, endears himself to the reader.

Professor Jayashree Mohanraj
The English and Foreign Languages University, Hyderabad

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THE ROAD TAKEN – Chandan Das

Constant monitoring of my hemoglobin was necessary: when my hemoglobin level fell to below 6gm%, it was time for blood transfusions.

An extract from the book.

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THE ROAD TAKEN – Chandan Das

While beta thalassaemia might spell immense physical pain, while it might stunt growth, while it might carry a sentence of a life to be cut short, it need not cut short the enjoyment of that life or shackle the spirit. From the suffering of thalassaemia to the joys of friendship, the sublimity of poetry, literature and nature, the love of family and the unexpected kindness of strangers, Chandan Das takes you on a truly uplifting journey, one that will make your spirit soar.

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THE ROAD TAKEN – Chandan Das

Home and in bed, inside blankets, I tried to sleep: it was cool and dark with the windows closed, but the lights of an aching pain pulsed in my head without stopping. I would be free now, after so long, of exhaustion, of the pain of the needle in my wrist, of the nausea of fever, of the tension of waiting for a reaction, of straining for breath with all my strength for air with an oxygen tube through my nose. Until the next transfusion.
And the next….

Read The Road Taken and you will be taken through the journey of thalassaemia and its effects.

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